Pleasure Guild of Nationwide Children’s Hospital

Kayden

Kayden[1]When Kayden was born in April of 2010 he was very fragile.  He had suffered damage to his brain, was having seizures, and had difficulty feeding and maintaining his body temperature.  He was often agitated and crying.  He was not expected to survive for more than a few months, so when he left the Neonatal Intensive Care Unit for home he was referred to the Nationwide Children’s Hospital Hospice and Palliative Care team.  Kayden was cared for by a team of doctors, nurses, a social worker, and a chaplain.  The goal of Kayden’s family and the team was to keep him comfortable and at home.  Much to the delight of everyone, Kayden did better than anyone expected!  At 10 months old, he graduated from hospice into the home-based palliative care program.  Today Kayden is three years old.  He has been diagnosed with Cerebral Palsy and requires a lot of extra care.  Despite this, Kayden is a very happy little boy!  He enjoys swimming in the pool, sitting outside in the fresh air, and watching sports news early in the morning with his grandfather Don.  He is happiest when he is being held and there is no shortage of people who love to do just that.  Home based palliative care continues to provide care for Kayden.  His family says they particularly appreciate the 24 hour availability of the team.  “There is always someone to call if we have a problem or a question and it helps us to keep him out of the hospital.”  The team enjoys visiting Kayden.  He always has a smile.  No one knows what Kayden’s future holds.  He has already defied the odds.  One thing is certain however, Kayden knows what it is to be loved.



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